Normally when you get a test result of a diagnosis it’s clear cut. You either have an illness or you don’t so this may seem like an odd thing to even discuss.
However, as I quickly found when I was diagnosed with Lyme Disease it isn’t always that simple.
Lyme disease seems to be rather controversial. There are broadly two schools of thought. One which believes:
– that this is can be hard to diagnose as it imitates other conditions
Who to believe?
However, after careful thought and research, I have to believe for several reasons:
1. The UK tests run by the NHS are unreliable. Even the NHS recognise them as at best around 50% reliable.
2. I have a positive test result and it is a very high result. If something is in black and white it can’t be discounted without careful thought.
3. I’m fortunate to be adequately educated enough to read (and understand) scientific journals and know they are sometimes flawed. There is sufficient research to demonstrate that testing is inadequate, a chronic form does exist and treatment is difficult.
4. Others pathogens or ‘bugs’ can evade treatment and symptoms lie dormant before returning e.g. malaria, Zika, Ebola. If it can for them, why not Lyme disease?
5. There is no known cause for Chronic Fatigue Syndrome or some of my other diagnosis’s so there is a chance this is the cause.
6. When I became so ill so suddenly after being fairly well all my life it doesn’t seem to make sense that I would have multiple causes and conditions. One trigger seems logical.
7. My symptoms match the symptoms of Chronic Lyme disease.
8. Chronic Lyme has treatment options and my other conditions at best have method’s of management. This is no life. Other people who have been treated have got better. Yes some I’ve read about on the Internet, but via friends I’ve met already met two people (even those who have been diagnosed with MS etc and in a wheelchair)
9. I’m still deteriorating. If my chronic fatigue was as a result of a past infection I was told to expect it to gradually improve.
10. I’d try almost anything to get my life back.
The Hippocratic Oath talked about doctors acting with warmth, sympathy and not being ashamed to say ‘I don’t know’, but sadly this doesn’t always seem to be the case.
I am happy to be proven wrong, but for now I have to believe and seek treatment.